A Hole in My Head

I have a secret that most people don’t know.

I can travel the world with very few problems, but after a few hours of normal physical work at home, I feel just like these photos look.

Regardless of whether I’ve chopped veggies and prepared a meal, cleaned a room, run errands or sorted files, I’m utterly exhausted. It sometimes takes me days to recover.

My fatigue has been increasing at an alarming rate since around 2005, but I’ve always chalked it up to (horrors) advancing age, arthritis, a mysterious virus etc. With my husband’s help, and lots of rest, I’ve managed pretty well. Fortunately, with a few hours/days of rest I can practically return to normal.

At last, my favorite (and only) Neurologist, Dr. Jody Stackman, has looked at my MRI and found that I have a growing hole (somewhere in my head??) leaking Cerebral Spinal Fluid (to somewhere???). He’s sending me to a Neurosurgeon in December to confirm his diagnosis, and hopefully, help me out.

What I have may be a bit rare, but not fatal as far as I can tell; it’s not Cancer or a tumor at all.

After living with exhaustion for so many years, I feel incredibly grateful to be on my way to feeling better.

Stay tuned!

If you’re interested in this Cerebrospinal Fluid Leak check the links below.

http://en.wikipedia.org/wiki/Spontaneous_cerebrospinal_fluid_leak

http://serendip.brynmawr.edu/exchange/node/1688

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